Group of a debilitated four-year-old are attempting to get a master bed which they state keeps him from stifling.
Ashley Odugbesan has delicate bones, interminable lung malady, a heart condition and is enlisted daze.
He heaves a few times each day, so should be propped up while in bed, his mom Charlette said.
She said the bed was given when they lived in Cardiff, yet in the wake of moving to Aberdare, Rhondda Cynon Taff, to be close to family, Ashley doesn't qualify.
Rhondda Cynon Taf gathering said it was the wellbeing board's obligation to give the bed and was "supporting the family in their requirement for a master bed and have drawn closer and tested the wellbeing board".
The customizable bed has high cushioned sides, anticipating Ashley from getting up unattended in the night.
"What I've been told is that Ashley doesn't meet criteria," Ms Odugbesan said.
Cwm Taf Morgannwg University Health Board said it couldn't remark on singular cases.
A representative stated: "If and when any worries are raised we will take a gander at the procedure and audit where suitable."
Solicitations for master beds go to the network kids' nursing group when there is an essential nursing need and considered against the convention for arrangement of kids' beds in the network, she included.
Newlife, the philanthropy for incapacitated kids, gave a crisis advance of an authority bed yet said a changeless bed was still critically required and would cost £5,830.
It is engaging for help to get Ashley a bed and a mysterious benefactor has promised to coordinate all gifts.
Ms Odugbesan said "flawless" Ashley enjoyed individuals singing to him, delicate play and authority lights.
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She said she "can't envision" what existence without the bed would resemble.
"We wouldn't have the option to rest… it's such a stress.
"He wouldn't be remained careful in the night, there's a hazard that he could tumble down the stairs, the hazard he could get into one of his siblings' rooms, he wouldn't rest it is possible that, he could hurt himself, he could be debilitated he could gag - we wouldn't oversee without the bed."
Ms Obugbesdan included: "I wish we hadn't climbed here, it's been awful. I feel as though I'm similar to a peon - now and again I feel truly victimized.
"It's simply not reasonable on him since I can't care for him appropriately, he ought to get the administrations we shouldn't must have to battle - on the grounds that life is a struggle enough.
"I think whoever settles on the choices should turn out and go through a day with him, since they'll be giving him everything."
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